How to Support a Parent with Dementia Without Burning Out
When it’s your mum or dad who has dementia, it changes things in a way you don’t expect.
You’re still their child, but now you’re the one reminding them to eat, keeping them safe, trying to hold onto bits of who they were. While some days you manage fine, mostly it’s a mix of sadness, guilt and a type of frustration that’s hard to explain.
So what do you do when the person who raised you needs more than you can easily give? How do you cope emotionally when your parent has dementia? Continue reading for some ways to make it a little easier.
How Do You Cope Emotionally When Your Parent Has Dementia?
There isn’t one clear way to cope when it’s your parent. Some days you’ll manage better than others, and that’s totally normal. But what can help is finding small ways to release the pressure, such as talking openly about how you feel, stepping back and asking for help when you’re running low and remembering that it’s okay to struggle with something this heavy.
Making Sense of The Emotional Side
Everyday life looks different when your parent develops dementia.
At first, it’s small things, such as forgetting a name or essential appointment, leaving the hob on or losing confidence in things they’ve done for years.
It’s really not easy at all to accept that the person you love, who once looked after you, now needs care themselves. Most people try to stay focused on the practical side of things because that’s the part that feels manageable. But then comes the emotional part, which is always harder to face as it tends to build up quietly, showing itself as constant worry, irritability, guilt or a kind of tiredness that doesn’t go away.
Talking with someone who understands dementia can help you make sense of what’s happening.
For some families, a short break or a period of respite care in a dementia care home provides space to rest and regroup. Knowing your parent is being cared for by people who understand the condition can bring real relief and help you return to the role of son or daughter rather than a full-time carer.
Let Go of the Idea of Doing It Perfectly
Caring for a parent with dementia is unpredictable because the nature of the disease means things change constantly, and what worked last week might not work today. And we don’t need to tell you how frustrating that can be.
We suggest focusing on what helps rather than what goes wrong, such as trying to keep communication as calm and straightforward as possible. So, give yourself time to pause and gather yourself before reacting when situations inevitably become stressful. If you lose patience, apologise, move on and don’t beat yourself up, because most family carers break at some point.
To make things easier for you, try sharing tasks with relatives, arranging professional carers at home or think about a move into a dementia care home.
Building Emotional and Practical Support
Try not to do everything alone. Support looks different for everyone, but it helps to have a few reliable people and services you can lean on.
Start with your own network
Be clear about the kind of help that makes a difference.
- Ask family or friends to take on specific tasks, like shopping, transport, cooking food, checking in or staying with your parent for a few hours.
- Don’t assume people know what to offer — tell them what would genuinely help.
- Rotate responsibilities so no one person, including you, takes on too much.
Connect with others who understand
Talking to people who’ve been through similar experiences can be very grounding. Look for:
- Local dementia support groups or carers’ cafes.
- Online communities run by trusted organisations, such as Dementia UK or the Alzheimer’s Society. Learn more about help with caring for someone with dementia in Essex here.
- These spaces can offer both emotional support and practical tips that make daily life easier.
Bring in professional help early
You don’t need to wait until you’re completely burnt out and exhausted to get extra support.
- Home care visits can help with personal care or medication routines.
- Short-term respite care gives you a break without stepping away completely.
- A specialist dementia care home can provide consistent care when needs become more complex, allowing you to stay involved in a healthier way.
Keeping a Connection as Things Change
As dementia progresses, your parent might not communicate or respond as they used to, which can be upsetting.
But that doesn’t mean the connection is gone for good. There are ways to keep it strong:
Focus on what’s known
Stick with parts of their day that still feel comfortable. Repetition is very calming for those with dementia; think the same song, a favourite mug or a familiar routine that helps them feel settled.
Spend time in ways that feel natural
You don’t have to plan special activities all the time. Sitting together while they watch television, preparing food for dinner, folding laundry, reading out loud to them or keeping them company can make the day feel easier for both of you.
Keep the pressure off communication
When language becomes harder, focus less on words and more on tone. A calm voice, clear enunciation, steady eye contact and a reassuring touch hold the connection steady when changes due to deterioration occur.
Notice what brings ease
You’ll start to see which things help them relax. Maybe it’s sitting by a window enjoying the view or listening to a familiar voice, whether in person, over the phone or on TV. Keep track of these small signs because they guide you on how to support them best.
Stay involved if they’re in care
If you’re visiting a parent living in a dementia care home, bring small things from their home life. Familiar belongings, scents or routines help staff see who they are and what makes them feel at ease.
Allow the quiet
It’s fine if there isn’t much to say. Quiet company is highly comforting to both of you, especially when tired or unsure.
Finding a Sustainable Balance
Caring for a parent with dementia is demanding and deeply personal and it’s so easy to forget that you need care too.
Getting help early from family, professionals, local resources or a dementia care home can make things more manageable and protect your relationship with your parent.
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